June 22-27, I am biking 335 miles from Pittsburgh to Washington, DC along the Great Allegheny Passage and Chesapeake & Ohio Canal to raise awareness for achromatopsia research and funding for a cure. My son was born with this rare genetic eye disease and recent clinicial trials have made a future cure a possible reality. Achromatopsia patients are day blind, have extreme sensitivity to light, poor acuity, nystagmus, and complete color blindness. Thank you for your support.
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