June 22-27, I am biking 335 miles from Pittsburgh to Washington, DC along the Great Allegheny Passage and Chesapeake & Ohio Canal to raise awareness for achromatopsia research and funding for a cure. My son was born with this rare genetic eye disease and recent clinicial trials have made a future cure a possible reality. Achromatopsia patients are day blind, have extreme sensitivity to light, poor acuity, nystagmus, and complete color blindness. Thank you for your support.
The Route
Sunday, June 4, 2017
Ride to Mt Vernon
55 mile training ride. Less than 3 weeks from my Ride For Achromatopsia.
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