June 22-27, I am biking 335 miles from Pittsburgh to Washington, DC along the Great Allegheny Passage and Chesapeake & Ohio Canal to raise awareness for achromatopsia research and funding for a cure. My son was born with this rare genetic eye disease and recent clinicial trials have made a future cure a possible reality. Achromatopsia patients are day blind, have extreme sensitivity to light, poor acuity, nystagmus, and complete color blindness. Thank you for your support.
The Route
Friday, June 23, 2017
Day 1 Recap (6/22/17)
Here's a video recap of day 1 - 62 miles from Pittsburgh to Connellsville, PA (last two hours in darkness).
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